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PostPosted: Mon Jul 30, 2012 8:51 am 
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Joined: Fri Jun 11, 2004 7:58 am
Posts: 507
Hello All,

Over the last few months I have been co-chair for organizing a fund raising event, with all proceeds going to help find a cure for Battens disease.
In short Battens disease is rare but progressively devastating to those afflicted by it. Within a very short timeframe it robs the person of their senses and cognitive abilities.
The website www.beatingbatten5k.com provides more information about the disease and also some insight on what its like for families living with it.

The event is a 5K run in Staunton, VA October 20th followed by a silent auction. Now if traveling some distance to run a 5k doesn't appeal to you, we also offer the option to donate money.
For either online donation or event registration visit http://www.beatingbatten5k.com . All payments are processed securely via PayPal but a paypal account is not required.
All donations are tax deductible and greatly appreciated.

Feel free to pass this along to anybody that might be interested.

-jams


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